Links

Fehlen Links, dann teilen Sie sie uns mit, wir publizieren sie.
Missing Links, inform us and we will publish the link.

CH
www.bag.admin.ch
www.bfs.admin.ch
www.gesetze.ch
www.icd.10.ch
www.hon.ch HONselect/RareDiseases
www.malignehyperthermie.ch
www.orphanet.ch  Orphanet Schweiz
www.orpha-net.ch
www.saph.ch Schweizerische Arbeitsgruppe für Pulmonale Hypertonie
www.siold.ch Swiss Group for Interstitial and Orphan Lung Diseases (SIOLD)
www.fondation-sanfilippo.ch Sanfilippo Syndrom
www.ssphplus.ch
www.srf.ch/gesundheit/gesundheitswesen/seltene-krankheiten-bereiten-probleme

EU
www.bbmri.eu/bbmri
www.dw.de/tag-der-seltenen-erkrankungen
www.ec.europa.eu/health/
www.echim.org
www.emhg.org
www.emea.eu
www.eurordis.org (European Organisation for Rare Disorders)
www.medicalistes.org
www.medizin.uni-tuebingen.de
www.orpha.net
www.oecd.org
www.sallsyntadiagnoser.nu


Facebook amazing – why not a shared page for all Rare Diseases, as they are rare….
www.facebook.com/globalgenesproject
www.facebook.com/RareDiseaseFoundation
www.facebook.com/pages/Office-of-Rare-Diseases-Research
www.facebook.com/RareDiseaseDay.US
www.facebook.com/SelteneKrankheiten
www.facebook.com/pages/Allianz-Chronischer-Seltener-Erkrankungen-ACHSE
www.facebook.com/pages/Zentrum-für-Seltene-Erkrankungen-Tübingen
www.facebook.com/events-1
www.facebook.com/TagDerSeltenenErkrankungenHamburg2013
www.facebook.com/raredisease.salzburg
www.facebook.com/events-2
www.facebook.com/events-3
www.facebook.com/wissenheiltCH

Stiftungen – Foundations – Fondations
www.foundation-rare-diseases.ch
www.orphanbiotec-foundation.com
www.rarediseasefoundation.ch
www.stiftung-seltene-krankheiten.ch

UK
www.bmha.uk
www.cafamily.org.uk
www.makingcontact.org

USA
www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm332351.htm
www.mhaus.org
www.nih.gov
www.ncbi.nlm.nih.gov/sites/GeneTests/?db=GeneTests
www.rarediseases.info.nih.gov/RareDiseaseList.aspx
www.rarediseases.org National Organization for Rare Disorders (USA)

WHO
www.mhaus.org
www.nih.gov

You tube
www.youtube.com-1

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